News
A young father shares his experience of living with ALS
If we were to ask you to pick an object defining compassion, what would you choose? For Phillipe B, it is his electric toothbrush. Recently diagnosed with amyotrophic lateral sclerosis (ALS), Phillipe shares his experience of the disease, and his vision of a life with...
Interview with Norman MacIsaac: I’m not a victim of ALS
I’m not a victim of ALS, I’m part of an army of people working to end ALS. We can use many words to try and define Norman MacIsaac: husband, father, friend, author, unapologetic optimist, ALS ambassador, patient advocate, leader. Today we are sharing a part of his...
Dr. Ducharme talks about the Jokers laugh
The Joker's laughter exists for real (Translated from lapress.ca) "The laughter of the Joker, excessive and stretching inordinately over time, is not an invention of the creators of the Machiavellian character. It bears a name: the pseudobulbar affect (PBA) And some...
Parkinson Canada Superwalk
Parkinson Canada SuperwalkFor more than 30 years participants from across the country have come together to show one another that they are not alone. Now, guided by the relentless perseverance of people living with Parkinson's standing up to their diagnosis more than...
Burgers to Beat MS
Burgers to Beat MSThe CRU and the MS clinic help raise money towards MS Research and Support programs. Thank you to Sean Carlin for organizing our participation! On August 22nd, $2 from every Teen Burger sold from A&W will go toward those living with MS.
Highest global enroller for brain tumour clinical trial
Highest global enroller for brain tumour clinical trialDr. Petrecca and his team (Josephine Chu and Adrien Poulin) have received a 2018 Scimega Network Champion Award for their outstanding performance as the highest global enroller for their U.S. Biotech Sponsor’s...
CTV with Dr. Paul Giacomini on MS in Canada
Your Morning with Dr. Paul Giacomini Canada has one of the highest rates of MS in the world. Join Dr Giacomini on CTV's "Your Morning" as he talks about why MS rates are so high in Canada and what is being done to fight it.
Dr. Angela Genge, recipient of the Forbes Norris Award
Dr. Genge awarded the 2018 Forbes Norris Award A big congratulations to our inspiring director, Dr. Angela Genge, on receiving the Forbes Norris award at the ALS MND symposium in Glasgow, Scotland! She is recognized for her exceptional care and compassion towards ALS...
The first on the INTRAGO brain tumour trial in Canada
The first on the INTRAGO brain tumour trial in Canada Le premier de l'essai INTRAGO sur les tumeurs cérébrales au Canada Glioblastoma Multiforme is grade IV brain cancer that is very aggressive. There are currently no cure but research is advancing to find new ways to...
Recent Facebook Posts
Saviez-vous que l'URC est aussi actif sur Instagram, Twitter et LinkedIn? Joignez-vous à nous!
Did you know that the CRU is also on Instagram, Twitter and LinkedIn? Come interact with us!
www.instagram.com/neurocru/
twitter.com/NeuroCRU
www.linkedin.com/company/crumcgill/
(Fr Suivant) We can use many words to try and define Norman MacIsaac: husband, father, friend, author, unapologetic optimist, ALS ambassador, patient advocate, leader.
Today we are sharing a part of his journey with ALS (amyotrophic lateral sclerosis), as Norman has been followed at the Neuro since his diagnosis in December 2014. He is a leader in international development and a strong ALS patient advocate who has taken part in different clinical trials with the Clinical Research Unit (CRU), directed by Dr Angela Genge, opting for an active approach to his disease and working hand in hand with the CRU team.
After working for many years in Africa, Latin America and Asia, Norman is now sharing his rich experience in is upcoming book “The Best of the Worst News”, where he establishes parallels between ALS and many situations he faced during his career improving the lives of marginalized populations.
----------------------------------------------------------------------------------------------------
Il faut un vocabulaire pluriel pour tenter de définir Norman MacIsaac: époux, père, ami, auteur, optimiste invétéré, ambassadeur SLA, défenseur de patients, meneur.
Aujourd’hui, nous partageons avec vous une partie de son parcours avec la SLA (sclérose latérale amyotrophique), Norman étant suivi au Neuro depuis son diagnostic en Décembre 2014. Meneur en développement international et fervent défenseur des patients avec la SLA, il a participé à plusieurs essais cliniques au sein de l’Unité de Recherche Clinique (CRU), dirigée par Dr Angela Genge, choisissant une approche active de sa maladie en travaillant main dans la main avec l’équipe de l’unité de recherche.
Après avoir travaillé plusieurs années en Afrique, Amérique Latine et en Asie, Norman partage désormais sa riche expérience dans un livre, “The Best of the Worst News”, où il établit des parallèles entre la SLA et différentes situations auxquelles il a été confronté durant sa carrière dédiée à améliorer les conditions de vie de populations marginalisées.
Norman MacIsaac’s blog : More than ALS www.more-than-als.com/
Norman MacIsaac’s book: The Best of the Worst News: Tales of Inspiration from Around the World and My Life with ALS (Insomniac Press, London, 2019).
Filming: Anthony John Revoy
Video Editing, Translation: Matthew Sparks
Nurse: Vince Dimayuga
Coordination, Interview and Text: Juliette Foucher
(Fr suivant) In September, our #neuromuscular team (Dr. Maxime Berube Victoria Eon Xin Di Dong) attended the annual Muscle Study Group meeting in Salt Lake City, Utah. MSG is a forum of leading experts in #neuromusculardisease With a strong focus on #clinicalresearch #translationalmedicine #drugdevelopment, MSG provides a unique space for collaboration between #pharmaceuticals #youngscientists, clinicians, and research staff alike.
For more information on #clinicaltrials in neuromuscular disease, visit out website at cru.mcgill.ca/neuromuscular/
//
En septembre, notre équipe #neuromusculaire, le (Dr Maxime Berube, Victoria Eon, Xin Di Dong), a assisté à la réunion annuelle du Muscle Study Group à Salt Lake City, dans l'Utah. MSG est un forum d'experts renommés dans le domaine #maladieneuromusculaire. Avec un accent particulier mis sur la #rechercheclinique #médecinetranslationnelle #dévelopmmentdemédicaments, le MSG offre un espace unique de collaboration entre #pharmaceutiques #jeunesscientifiques, #cliniciens et staff de recherche.
Pour plus d'informations sur #essaiscliniques dans les maladies neuromusculaires, visitez notre site Web à l'adresse cru.mcgill.ca/fr/neuromusculaire/